Monday, May 15, 2017

LGBTQ-Inclusive Hospice Palliative Care by Kimberly D Acquaviva

Rating: WORTHY!

This review is based on an advance review copy for which I thank the publisher.

This amazingly-named author is a tenured associate professor at the George Washington University School of Nursing, and evidently knows her stuff. I'm not a health-care professional, but I have worked closely with nurses in two different hospital environments, so I was familiar with the kinds of things she discusses here, and the importance of getting them right. She's also a doctor - of the PhD variety (in Human Sexuality Education) rather than the MD variety - and has a master's in Social Work and a BA in sociology (all from UPenn). She's also been a Fulbright scholar, so clearly she's on top of her game when it comes to the material she goes into here, and she pretty much covers the gamut of required learning when it comes to the treatment (in the broadest sense) of people from the LGBTQIA community.

The chapters cover these topics:
Self-Awareness and Communication
Sex, Gender, Sexual Orientation, Behavior, and Health
Understanding Attitudes and Access to Care
The History and Physical Examination
Shared Decision Making and Family Dynamics
Care Planning and Coordination
Ethical and Legal issues
Patient and Family Education and Advocacy
Psychosocial and Spiritual issues
Ensuring Institutional Inclusiveness
But what was really impressive was how often the author steps outside the box to point out areas you might never even have considered might be relevant or important. She's definitely given this topic some considerable thought, and I doubt there are many questions you could come up with which aren't at least touched on here.

The book is written for academics, but it's very accessible and straight-forward throughout. It contains a glossary, references, and an index. Overall I recommend it. If I had a reservation about any of this, it was that, as usual, this type of book seems to have been written solely with a print version in mind, and the e-version coming in a poor second, so while I am sure the presentation and formatting of the print version is excellent, the e-version which I got left a lot to be desired! I am hoping, as I write this, that the advance review copy I had was a quick and dirty conversion for reviewers, and that if there is to be a ebook, it will be a lot better than this, because frankly the e-version was awful!

The errors and poor formatting of the e-version made for a really irritating read. You may call me a prima donna if you wish, since I don't care what you think of me, but my expectations are low when it comes to the quality of e-versions of ARCs. Even so, there really is no excuse for a sloppy review copy like this. Reviewers aside, it's an insult to the LGBTQIA community, and any reviewer would be perfectly justified in failing a book in this condition. I know Amazon offers a truly crappy Kindle app, but even it can do better than this would lead you to believe!

I'm not a professional reviewer despite the shields with which Net Galley has honored me, and I realize that we amateurs can't expect to be treated like professional reviewers and get a pristine copy, much less a print copy, but we do deserve a certain minimum level of respect, especially if we're expected to enjoy a book and be persuaded to feel inclined to review it favorably! personally, I ditched Smashwords as a publishing platform because they're insanely anal and too-often inconsistent for my taste, but I have to agree in principle with their approach to pristine ebooks, because it does matter!

However, for me what's most important is the overall book - not the cover, the gloss, the blurb, or the hype, but the interior, and what it says (or what the author clearly intended it to convey in the version they worked on!). What saved this book for me was that it's far too important to fly off the handle over poor formatting in review copy, so while I recommend it, I am going to point out examples of the main flaws I saw here for the record in the hopes that they will be fixed before any e-version is published.

Tables are not represented well in this version. Some of them appear right in the middle of the text with no separation, such as table 1.1 in the self-disclosure section. The result of this is that the table appears as though it's a part of the text, causing some sentences to end right in the middle, and then resume later, such as "...wife, though her eyes were dry..." in Chapter I step 5. There was a really bad example at location 593: "If you notice the patient appearing agitated or impatient each time a family My dad moved in with me over the Christmas holiday in 2012." 'Family' was completed three paragraphs later with 'member'. The 'My dad' portion was evidently an insert for a side bar or something like that.

There were also other oddball mixtures, such as Location 679 where there was a book reference and copyright notice to this book and author right in the middle of the text with what looked like a page number (38), but it's hard to tell what that was since there are no easily discernible page numbers in this e-version of the book. I don't read introductions (or prologues, prefaces, etc). I think they're antiquated, but as I was swiping past the intro to get to chapter one, I noticed that the lower case Roman numerals for the page numbers were in the middle of the screen rather than at the top or bottom. Some text was randomly in red "ink" such as " What are your goals related to the treatment and prevention of adverse effects of treatment?"

So, while I was disappointed that the presentation was not better, I was delighted with this book, which from my non-professional, but not uninformed PoV, looks to be an invaluable addition to resources any health care professional can call upon to enable them to do a better, more empathetic, and more caring job. The rainbow can only get brighter.